In 1988 I found out I had Cushing's. I went to doctors but no one could figure out what was wrong I guess I didn't get to the right doctor. I hurt my side at work one day. They sent me to the company- doctor. He took one look at me and said You look like you have Cushing's Disease. So I went back to my regular doctor and told him to give me a test for Cushing's. Well. the test came back that I did. He sent me to an endocrinologist. She took pictures of all the bruises. I really looked like a blimp. I think mine really started in 1987 or maybe before. I went from 105 lbs. to 173 lbs. I had the extra hair on my face and my whole waistline was blue from my pants being too tight. I also had boils on my waistline from the pants rubbing - I got it where I had taken a string and tied the pants together.
I was so weak that I could hardly put one foot in front of the other. I also must have had mood swings too. because I got divorced in 1987. I had all the symptoms (except tooth loss) that Scotter talked about on the internet on February 5 1996.
I went into surgery on June 9. 1988. They found a tumor on my left adrenal gland. The tumor was three times the size of the adrenal gland. 35 hours after the surgery you couldn't tell my head from my shoulders. And if I wasn't big before I was twice that size. They cut my throat and had me on a respirator. And somewhere during that time I had a major stroke. I was in intensive care for three months. Each time they would take me from intensive care to a room so I could start therapy. something else would go wrong and back to intensive care I went.
I was fed intravenously for a long time because I couldn't hold any food down. I threw up green bile every time they touched me. I guess one night I got so bad that they had to rush me up to surgery again and do an exploratory on me which did no good. I had eight doctors and they couldn't find out what was wrong. Well. my blood pressure dropped to 60 over 40. 1 was about to push up daisies. They took my gall bladder out.
I spent six months in the hospital. I thought the pain from all the surgery was bad; therapy was worse. They were trying to move things that didn't work so well anymore. Well by the time I had learned to take a couple of steps they sent me home. I went home for three months. I couldn't even sit up without falling over. I had home health care two hours per day. I had to hire someone to stay five hours a day with me.
I had a fifteen-year-old son and I couldn't put this burden on him. So I called my brother and had him put my house up for sale. I sold everything I had. My son went to live with my- other married son. I went into a nursing home. I still couldn't eat without throwing up at least once a day. Only this time it was clear and kind-of bubbly. While there. I found out that I had a rupture in my stomach. I had that corrective surgery done. I spent a year in the nursing home. There was someone there that told me of a place you could go to have therapy. No one told me they had therapy hospitals before. I spent a month in a hospital learning to sit up and keep my balance.
When someone tells you what to do for a year and half. it is very hard to start over. Before I could leave the hospital. I had to spend 24 hours in an apartment at the hospital by myself. I had to put myself to bed and go to the bathroom all on my own. This was very scary for me. But I was determined to do it.
In 1990 I got my own apartment. I have been on my own ever since. Vocational rehab gave me a test to see what I would be good at - maybe a part-time secretary of some sort. They will teach me on a word processor. I need something so I can spell the words right. The state of Indiana taught me to drive again. When I get through with this. they will own me. God already does.
From all the stuff I have had wrong with me. I think my body had shut down to die, only I wouldn't let it. God has a purpose for me even to let people know that you have willpower and will use it. I still don't walk too well and I'm in a wheelchair. My arm doesn't work; I've learned to do without it. I do all my cooking and washing. It would really be nice if someone would invent a bra you can fasten with one hand; they would make a mint. Maybe someone out there can tell me how to get rid of this buffalo hump?
|Last Revised : August 2003